Moments after our son Jack was born in September 2012 we learned that he had a congenital birth defect, a giant melanocytic nevus. At the time we didn’t really comprehend the path that lay ahead of us…ahead of him. We just held on to the fact that in every other way he was normal despite the large brownish/black mark covering 80% of his back. Jack had an MRI at four months old to confirm that no abnormal melanin cells were in his brain or spinal chord. He then went through a process of tissue expansion (growth of new skin) and excision of the affected area, which required two surgeries. Shortly after his second surgery he battled a staph infection. Today he is a healthy and happy little boy. Here is his…our story.
June 15th: when fear became a reality
Continued: when fear became reality